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Norah Needs You

Be the Bone Marrow Donor

For this young Dancer / Joke-Teller / Bookworm

Living with Fanconi Anemia 

Meet Norah

Meet Norah

Norah is an expert joke-teller, modern-dancer, ice cream-licker, and loving big sister.  At five years old, she takes her jobs pretty seriously. And she's not messing around when it comes to chocolate chip cookies.  When Norah's not in Pre-K, you can find her playing in her favorite park or lounging at home with her nose in a book (or ten). 


Full of song and dance


Always eager to be twinsies with her little brother


Reaching for the sky


Queen Elsa and her firefighting sidekick


Will you be my Valentine?


Taking charge at her first bone marrow biopsy

What's FA?

Norah was diagnosed with a rare genetic disorder called Fanconi Anemia (FA). Essentially, FA interferes with her body's ability to properly repair its DNA.  If untreated, it increases her risk of leukemia or bone marrow failure to 90%.



Currently, the only treatment to prevent leukemia is a bone marrow transplant.  Norah is healthy right now, but her doctors predict that she will need a bone marrow transplant in the next few years which will require a donor with an exact match to make sure the procedure is successful.


Finding the right bone marrow match is not easy. While siblings typically make the best donors, Norah's little brother is unfortunately not a match. We need to expand the national bone marrow registry of potential donors to find a match for Norah. Norah's family is working with both Be the Match and Gift of Life to add people to the national bone marrow registry with a simple, painless cheek swab.

This is where you come in.

What's FA?

Save a Life

Norah has a donor match out there - IT COULD BE YOU

Join the registry with a simple painless cheek swab to help save Norah's life.

Adding donors to the registry increases the likelihood of finding a life-saving match for Norah and others in need. 

Save a Life


Register to get your cheek swab in the mail! 



Encourage 10 people to swab or share with your network!


Organize a bone marrow donor drive to get people in your community registered!


Donate to the Fanconi Anemia Research Fund to help find a cure!


Get answers to frequently asked questions about bone marrow donation and the commitment involved: 



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